Patient Care Services
The UI Health Craniofacial Center is a state-of-the-art, patient-friendly facility offering many treatment options. As part of UI Health, a teaching and research institution with the largest medical school in the country, our multidisciplinary team has access to the most up-to-date diagnostic and treatment options available. The Craniofacial Center is fully computerized and makes use of digital equipment and computer software for patient evaluation, planning, and treatment in surgery, prosthetics, speech, and audiology.
Patients that are referred to our center to be seen by our team of specialists may have any of the following conditions or syndromes:
- Apert's syndrome: A genetic disorder characterized by the premature fusion of certain skull bones (craniosynostosis). The head is unable to grow normally, which leads to a sunken appearance in the middle of the face, bulging and wide-set eyes, a beaked nose, and an underdeveloped upper jaw leading to crowded teeth.
- Cleft lip and palate: Facial and oral malformations resulting in a split or separation of the lip and/or roof of the mouth.
- Craniosynostosis: The premature fusion of skull bones.
- Crouzon syndrome: A genetic disorder characterized by the premature fusion of certain skull bones (craniosynostosis). Abnormal growth of these bones leads to wide-set, bulging eyes and vision problems caused by shallow eye sockets; eyes that do not point in the same direction (strabismus); a beaked nose; and an underdeveloped upper jaw.
- Giant nevi: Large, benign, tumor-like pigmented malformations that that can cover the head, legs, arms, or back.
- Head and neck tumors
- Hemifacial Microsomia: a condition in which the lower half of one side of the face is underdeveloped and does not grow normally. It also is known as first and second brachial arch syndrome, oral-mandibular-auricular syndrome, lateral facial dysplasia, or otomandibular dysostosis.
- Jaw deformities
- Micrognathia: A condition in which the jaw is undersized.
- Microtia: A congenital deformity where the external ear I underdeveloped.
- Oral tumors
- Pfeiffer syndrome: A genetic disorder characterized by the premature fusion of certain skull bones (craniosynostosis). Abnormal growth of these bones leads to bulging and wide-set eyes, a high forehead, an underdeveloped upper jaw, and a beaked nose. More than half of all children with Pfeiffer syndrome have hearing loss; dental problems are also common.
- Pierre Robin sequence: A set of abnormalities affecting the head and face, consisting of a small lower jaw (micrognathia), a tongue that is placed further back than normal (glossoptosis), and blockage (obstruction) of the airways. Most people with Pierre Robin sequence also are born with a cleft palate.
- Traumatic craniofacial injuries
- Treacher Collins syndrome: A condition that affects the development of bones and other tissues of the face. People with Treacher Collins syndrome often have eyes that slant downward, sparse eyelashes, and a notch in the lower eyelids called an eyelid coloboma.
- Vascular malformations
Your first visit will include a comprehensive evaluation by our team of medical and dental specialists and allied healthcare professionals. This visit involves a physical examination and 2- and 3-dimensional digital X-rays and photographs, among other tests. The team then meets in conference to develop both a short- and long-term care plan. These treatment plans are then presented to the patient and family and their referring doctor.